Ramallah- Ma’an- The Palestinian Society for Hemophilia organized a community meeting today at its headquarters in the city of Al-Bireh, on the occasion of the start of the new school year. The meeting brought together school students with hemophilia and their parents from the central West Bank governorates, with the aim of discussing the health and social conditions of patients and exchanging experiences between families to enhance networking and cooperation among them. The meeting also aimed to enhance the participation of patients and their families in the activities of the society and its institutional and public role in supporting their rights.
The meeting was opened by Dr. Hesham Darwish, a member of the association’s board of directors, who stressed the importance of the role of patients and their families in supporting and activating the association’s work. He explained that patients are the backbone of the association’s work and key representatives before service providers and decision-makers, whic
h gives them a pivotal role in defending their rights to receive comprehensive treatment and healthcare in accordance with approved treatment protocols.
The meeting included an open dialogue between the members of the administrative body and the participants, addressing the most important needs of patients and the challenges they face, especially with regard to the provision of medicines in government hospitals. The importance of accurate diagnosis and the permanent provision of clotting factors was emphasized, in addition to physiotherapy, rehabilitation, and operations for bleeding complications. The role of psychological and social care in enhancing the integration of patients into society was also discussed.
Jad Al-Tawil, Chairman of the Board of Directors of the Association, pointed out that the Ministry of Health is the body responsible for providing health services to patients, and is responsible for organizing the mechanisms and logistics related to securing medicines and services. He stressed that
the role of the Association lies in raising awareness and educating patients and mobilizing community support in cooperation with the Palestinian Ministry of Health. He also referred to the Italian project that aims to establish specialized clinics and raise the efficiency of medical staff, which is a long-awaited project.
Dr. Ali Abdel Rabbo, a member of the Administrative Board, added that receiving medical, psychological and social care for hemorrhage patients is a guaranteed right, stressing the need for patients to continue their role in influencing through institutional and public work to guarantee their health rights.
Mr. Ashraf Abu Jaafar, a member of the Administrative Board, spoke about his personal experience in following up on patients’ cases in hospitals and treatment units, highlighting the challenges facing patients and their role in obtaining the necessary services.
The meeting witnessed great interaction from patients and their parents, as they discussed in depth their needs and the challe
nges they face in state institutions, including the Ministry of Health and Social Development. Participants also compared global treatment protocols and services provided within the Green Line, expressing their aspirations to improve the level of care provided to Palestinian patients.
At the end of the meeting, Mrs. Taghreed Jodeh, a member of the administrative body, supervised the distribution of educational gifts to the participating patients, and announced the organization of similar meetings soon for hemophilia and bleeding patients from school students in the north and south of the West Bank.
Source: Maan News Agency